My emotions are all over the place from one hour to the next. I look at my outwardly healthy, happy little girl and think that nothing can be wrong with her. I also know that x-rays don’t lie and there are some things to figure out and the mystery is a little frightening. I feel so much stronger and hopeful than I did last week though and know that whatever the final result, things will work out. She’s going to be fine in the long run.
One of my many reasons for hope is the incredible wit of our girl. Five really is an awesome age. She’s always been a hilarious child, but it’s kicked into overdrive lately. Even in the middle of exams and lab tests, she’s got a gem to crack everyone up.
#1
Pulmonologist: “Savannah, are you good at sitting still?” (He was explaning the CT Scan to her)
Savannah: “Mmmmm…not really”
#2
Savannah: “Mama! That. is. disgusting!”
Sooooo, in the height of my panic about CF, I searched every known symptom. One of the most obvious is a salty taste to the skin. I believe that I told Savannah I needed to taste her skin and that was her response. I’m kind of glad she’s not on Facebook yet, because her status would have been “my mom is a raving nut”.
#3
Savannah: “You know, everyone is a little salty Miss Mary”
Savannah to her sweat test nurse, Mary, who I wanted to bottle up and take home with me. She was such a perfect kid’s nurse. Full of chatter and sweetness and patience. On a side note, she was also astoundingly positive. She was telling Savannah (for Conor’s and my benefit, really) that she had to do a good job on her test because she didn’t want to have to do it twice. She told her she was most certainly fine and doing the test twice would just be a waste of time.
More updates when we have them. I’ll let you know what she said about blood tests next time.